Friday, December 28, 2012

Radiation Week 6

Mom just finished her 28th radiation treatment.  Two more to go next week and she is done.  We have a follow up appointment with the radiation doctor after she finishes her final treatment next week.  Her skin is still holding up really well; the doctor and radiation techs are really happy with the response.  She will have a CT scan in 2-3 weeks to see how the cancer responded.
We meet with her regular oncologist (Dr. Margolis) on Jan 9th.  At that point we'll get a better plan for the coming weeks.
We are all headed to Baroda to visit my brother and family for the weekend.  It will be nice to celebrate a belated Christmas together.
Wishing all of you a healthy new year.

Saturday, December 22, 2012

Radiation Week 5

We are counting down the radiation treatments.  Mom completed 24 of the 30 treatsments so far.  The radiation therapy is going well.  The doctor continues to be pleased with the response from treatment.
Mom had a few rough days this week.  She stopped taking the oral chemo drug last week.  We see the regular oncologist next week to see how long of a break she will before she begins the oral chemo again.  I think it is good that she is able to have some better days around the holiday. 
The big news this week is that she got a hair cut.  This is her first hair cut since February.  There was enough hair to shape on the sides and back.  For those of you that are not able to see her, her hair is now curly.  The only time I remember her hair being like that was after her getting a perm.  So, a few chemo treatments and her hair came in curly. No more perms for her.
This is the first time that my parents will be joining us for the Christmas holiday in many years.  They are normally in Florida by this time.  I am glad that we will be able to share this holiday together. 

Friday, December 14, 2012

Radiation Week 4

Well, mom just completed her 19th radiation treatment today.  Only 11 more to go.  We are on the downhill side of this course of treatment. When we met with the doctor this week, he was really happy with how she has been responding.  Although her breast is getting pretty red, the doctor said it is looking great.  It looks pretty red to me, but I obviously don't see as many breasts as he does :)  Mom had a few rough days this week, but we take one at a time. 
Today is a very sad day in this country.  How can anyone take the innocent life of a child?   My girls will be getting an extra hug when I pick them up from their elementary school today.
I wanted to tell a quick story about how proud I am of Bridget (now in 5th grade).  She has been doing a research project at school.  Her subject has been breast cancer.  She selected the topic herself, so I know how much mom's illness has affect her.  Bridget and Julia also raised $116.41 that we donated to the Beaumont Foundation for breast cancer.  She needed to interview an "expert," so we took her to one of mom's doctors appointments with Dr. Margolis.  She asked him some questions for her report.  She also wanted to do a section on "Someone real."  So, she of course interviewed my mom.  One of her questions included "How does it feel to have cancer?"  Mom's response was "I am thankful to still be here to watch my grandchildren grow up."  We are thankful that she is here to be a part of our lives and keeps inspiring others.
We should all feel blessed with the loved ones in our lives. 

Sunday, December 9, 2012

Radiation Week 3

Mom completed 14 of her 30 scheduled radiation treatments.  We are starting to see the effects of daily treatments, both good and bad.  On the good side, the swelling of her breast has continued to shrink.  That typically indicates that the cancer cells and surrounding areas are shrinking.  There is a noticable deduction in the swelling.  On the bad side, her breast is starting to get that "sunburn" look from the intense radiation - as expected at this stage.  One area is especially sore, but she is taking good care of it so far.
Moms energy level has continued to increase since she has been off of the Abraxane.  She just completed her fourth week of the oral chemo drug (Xeloda).  The side effects are much better than with the Abraxane.  Her hands and feet continue to improve.  The pain and numbness continues to fade.
She was feeling well enough this week to endure a trip to IKEA with me.  We haven't shopped together in a long time.  It was nice to spend some brousing time with her again.  She managed the shopping trip quite well.  We walked for more than an hour.  It was a slow stroll around the store, but her feet didn't bother her and she wasn't too tired when we were done.  It was good to get her out of the house again for something enjoyable.

Friday, November 30, 2012

Radiation Week 2

Mom completed 9 of her 30 treatments so far.  She is still managing the radiation effects pretty well.  It appears that the redness from the cancer is beginning to fad.  A good sign.
She has also been tolerating her oral chemo drug well.  The side effects have been very minimal.
Mom just completed knitting new scarfs for my girls.  Julia's matches her backpack.  Bridget's matches her jacket.  They even got compliments on them from someone at the bus stop today.  Nice to know that mom's handy work is being noticed.
Mom even felt well enough to hem a pair of Julia's pants for me this week.  Needless to say, I didn't own enough stick pins for the job.  So, the next day, mom brought over a box of stick pins from England for me.  Apparently they have glass ends which you can iron over (instead of plastic ends that can melt).  I don't even iron - but when I do, I'll have plenty of stick pins to use.
She got a bit of a cold this week, but nothing a few anti-biotics couldn't help. 
Taking one day at a time.

Sunday, November 25, 2012

Radiation Week 1

Mom ended her first week of radiation treatment on Friday.  The treatments are 5 days a week (for six weeks).  However, they are closed for holidays.  So, mom only had 4 treatments last week.  The fifth day was really a day of Thanksgiving for our family this year.  I am thankful that we were able to spend another Thanksgiving together.  I wasn't convinced of that back in January/February when she was first diagnosed. 
Lots of people ask me about her spirit.  She is still going strong.  She still has good days and bad days physically, but her attitude continues to be unwavering.  I would say that the good days still outnumber the bad. 
Yesterday was a family wedding reception for my cousins son.  It was about a 1 1/2 hour drive from home.  Not far, but not around the corner.  Probably not one of mom's best days, but she went anyway.  How could she miss visiting with all of the relatives and friends she doesn't see very often?  Those are the days that we should all be thankful for.  Best wishes for a long and happy life together to Jeff and Danielle.
I hope you all remember to be thankful for someone special in your life.  You never know what the next year will bring.

P.S - I am thankful for all of you, my blog readers.  I sometimes think that I am writing to no one.  Shirley, this one was for you!

Thursday, November 8, 2012

Radiation Update

Well, it has been about two weeks since my last post and a lot has happened.  We met a couple of days ago for our first consultation with a Radiation Oncologist - Dr. Vicini.  We also have continued to see Dr. Margolis.
Here is what is going on....
1)  Mom started taking an oral chemotherapy drug over the weekend.  She developed a bit of redness after stopping the Abraxane.  So, Dr. Margolis started her on a new drug.  Good news is that the redness has all but disappeared.  The side effects of the new drug seem to be tolerable at this point. 
2)  We switched to a different chemo drug because of the continued numbness in moms hands and feet.  The feeling in her feet and hands are getting much better now that she has been off of Abraxane for several weeks.
3)  We will go back to the Radiation guy next week.  We anticipate having some additional scans done at that point and then beginning Radiation therapy shortly thereafter.  Radiation would be 5 days a week for 6 weeks. 
4)  The new drug thankfully is oral so mom can take it at home or whereever she is.  Eventually, she will only need to go to the doctor every 3 weeks for the Herceptin treatment. 
5)  The Radiation guy was very complimentary regarding moms spirit and attitude considering what she has endured for the last 10 months - not surprising to me at all.

So, the next phase of treatment is upon us - one day at a time.


Thursday, October 25, 2012

Treatment #34

Mom had a pretty good week.  She has been keeping busy doing a few things outside as well as making some more pot holders.  Two more pot holders were delivered to my house today when mom and dad stopped by for lunch.
Moms toes are still troublesome.  Dr. M referred her to a podiatrist to see what they can do.  The nails are starting to come loose and her feet were really itchy for several days last week.  The numbness is still there.  She will be scheduling an appointment with dad's podiatrist ("his favorite doctor").
Today marks a turning point in moms treatment.  The CT scan came back with good news.  No new cancer spots and the current mass on her liver is stable.  Mom started a 3 week treatment today.  So, after 34 weekly treatments, her next one won't be for 3 weeks.  I think we are all happy for the break - especially mom.  She got a 3 week dose of Herceptin.  We are stopping the Abraxane for a while.  Assuming that her condition is stable, she will continue to have only Herceptin every 3 weeks.   There is still some redness on the skin of her breast where the tumor is. If it remains stable, no additional chemo at this point. If it gets worse, then she will probably be back on some sort of chemo drug.
Now that we are "done" with the chemo for a while, Dr. M referred us to a Radiation Oncologist.  We have an appt with him on election day.   We are hoping to be able to treat the redness on her breast with radiation. 
All in all, this is very good news.  We are hoping that this break from chemo will give her time for her feet and hands to feel better.
So, my next post will probably be in a couple of weeks after we meet with the radiation guy.

Friday, October 19, 2012

Treatment #33

Well, mom had a few tough days with week.  Her feet continue to bother her and are painful and numb.  So, the doctor held off on the Abraxane this week.  She only received her maintenance drug (Herceptin). 
However, her attitude is still good and she remains positive.  She has been feeling much better the last few days.  She was able to be outside for some of the nice weather days we had.  She even trimmed a few plants for the coming winter.
The doctor ordered a CAT scan for this week.  This will be the first full body scan since her diagnosis in February.  We should have a better idea next week on how her body is fighting this terrible disease. 


Thursday, October 11, 2012

Treatment #32

Well, mom had a full treatment again today.  Dr. M was out of town, so we saw one of the other doctors in the practice.  He mentioned that mom has a really good attitude. 
Her blood levels are all doing really well still.  We are counting our blessings.
I know that mom is feeling better.  She has lots of energy.  She made pot holders for all of the nurses in the treatment area.  She gave them out today to everyone.  I think there are either 7 or 8 different nurses, so mom brought in a stack to make sure that there were enough for everyone - even those that had today off.
It is always nice when she has a good week.

Thursday, October 4, 2012

Treatment #31

Today was just a partial treatment for mom.  It wasn't one of her better days today.  It is amazing to see how her posture, demeanor, look and even her voice changes when she is having a difficult day.  Her bad day started before her chemo treatment.  All of the nurses and the doctor could immediately tell that today was not a good day.  This afternoon was a bit better for her.  We are hoping that tomorrow will be a better day than today.
Last week, one of the assistants in the treatment room received a couple of pot holders that my mom crocheted.  I went to see Renee today to have her call in some meds for mom and she told me how much she liked the pot holders and was so happy to get them.  I had to laugh and tell her that I had half a drawer full of them.  I could even put in orders for different sizes or colors.  I know I have probably taken all of my pot holders for granted.  Seeing the happiness that little gesture made for Renee was so nice. 
Mom continues to show appreciation to all of the wonderful people who are taking care of her.  It is amazing to be able to touch someone's life with something given from the heart.

Thursday, September 27, 2012

Treatment #30

Ok, you know when you have one of those big milestone birthdays that end in a zero.  Well, I sort of feel that way with mom's treatments.  Today was treatment #30.  Where has the time gone?  All things considered, mom is doing great.
She had a rough couple of days this week.  We are "blaming" it on the flu shot that she had last week.  However, she is now doing much better.
She received a full dose of the chemo treatment today.  Hopefully her hands and feet won't get too numb this week again.
Well, we see Dr. Margolis every week.  After a while, you get sort of comfortable with people when you see them frequently.  I would say that we have that relationship with Dr. M.  We had a family dinner this week and the subject of medical marijuana came up.  So, we decided to see what Dr. M would say about the subject.  Does he prescribe it?  Well, we asked.  The answer is "yes."  He has prescribed it for nausea and loss of appetite.  His feeling is that it really shouldn't be prescibed for pain.  The best candidates for it are those that have smoked it in the past.  He sort of bases the discussion around the specific patient.  Well, the laughter started at this point.  He rightfully guessed that mom probably wasn't a user in the past and is not likely to take it up now.  However, he did say that he would be more than happy to get her "a card."  He thinks she would be the talk of Rainbow Village if she pulled out her user card when she goes back to Florida.  Also, dad would be eligible for a card because he would be considered the primary caregiver.  Needless to say, we were all laughing at even the thought of it.
So nice that laughter is still part of our lives.

Thursday, September 20, 2012

Treatment #29

Today was treatment number 29.  Mom just got the Herceptin.  He feet and hands were numb this week, so the doctor skipped the Abraxane today.
Moms mammogram results are good.  The tumor is shrinking.  She still has some redness on the skin, so we continue to monitor that.
Moms potassium level was a bit low today, so they added some to her treatment.
She is also getting a flu shot today.  Are you getting one too?
All in all, she is still feeling good.  Her energy level is good and she continues to do some hand work.  She finished her afghan this week.
Well, we are taking this one week at a time.

Thursday, September 13, 2012

Treatment #28

Well, mom had another full chemo treatment today.  She continues to feel pretty well, all things considered.  Mom is able to take some day trips to see friends/relatives on a regular basis.  Her spirit continues to be positive. 
She is going to be having a follow-up mammogram next week.  We now know how the liver is responding, we want to see how the lump in her breast is doing. 
We discussed mom and dad going to Florida this winter.  Dr. Margolis feels pretty comfortable that mom can continue her treatment down south.  So, no plans right now, but we are hopeful that she will continue to feel well and be able to join the Rainbow Village group at some point.  Timing, travel and treatments are still all up for discussion.  However, it is something nice to look forward to.

Thursday, September 6, 2012

Treatment #27

Well, it has been just over 6 months of treatments for my mom.  Wow, how time flies.  I would have never guessed that we would still be doing this after so many months.  She was diagnosed at the beginning of February and had her first treatment at the beginning of March.  I look back and think about what she has gone through personally and what we have been through as a family.  Thank you to all of you that have supported us in your own way (cards, prayers, calls, and well wishes just to name a few). 
Mom's treatment was pretty typical today.  She received the full dose of chemo as well as the Herceptin.  She continues to feel good.  These last several weeks have been really good for her.  Her energy level is good and the pain is manageable.  We are thankful for every good day that she has. 

Thursday, August 30, 2012

Treatment #26

Hello All, I am back from Africa.  I know this blog is about my mom, but I at least wanted to let you know that we had an incredible, amazing trip.  The animals, scenery and people were wonderful.  It was definitely a trip of a lifetime.
Mom had her 26th treatment today.  She is continuing on her same weekly dosage of chemo.
Today we had some really great news, the results from her MRI came today.  The large mass on her liver has continued to shrink.  It is roughly half the size it was several months ago.  So, it appears that this treatment has been effective so far for her.  At this time she will maintain her current treatment and we will reevaluate in several weeks.
Mom has continued to feel well over the last few weeks.  Her energy level has been really good.  She takes a moderate amount of pain medication to ease the pain in her hands and feet.  She even made a batch of Nectarine jelly while I was gone.  It is nice to see that she is able to do more of the things that she loves.  She also recently started knitting another afghan.  All good things.
On a separate note, my Uncle Ed fell off the roof at church and broke his femur.  He is coming home from the hospital today.  Recovery will be several weeks.
Please keep both of them in your thoughts and prayers.

Thursday, August 9, 2012

Treatment #23

Today was mom's 23rd treatment.  She is presently on a one week on and one week off of the full chemo treatments.  Today was the week on.  She felt good this week and this course of treatment seems to be working well for her.  Her energy level has been better than in weeks past.  She is able to do more things around the house.  She now only takes 2 pain pills a day for her feet.
Mom's hair is growing back considerably.  I'd describe it as a good miliary length.  The gray is starting to come back and she is looking more like her old self.
I won't be around for treatment 24 or 25.  I am traveling to Africa with my family and in-laws.  We will be gone for a little over 2 weeks.  Dr. Margolis will continue mom on her present treatment until I get back.  Hopefully, she will still continue to feel well while I am gone.
Mom and dad volunteered to watch our guinnea pig (Buck) while we are gone.  The girls and I delivered him to their house this morning.  Mom and dad seemed pretty happy to have the company while we are gone. 
Mom's next MRI of the liver is scheduled for Aug. 27th (the day after I get home).  We should have the results a few days later. 
So, I am signing off for a couple of weeks.  Just remember, no news is good news.

Thursday, August 2, 2012

Treatment #22

Today was a very uneventful visit to the doctor.  Dr. M was out of town, so we saw another doctor in the practice.
Mom got a dose of Herceptin only today.  We were out of there in no time.
The nurse sent home an afghan for mom to fix.  There are several that are in desperate need of repair.  Mom will be bringing her hook next week and some yarn to start the repairs of the ones that are still in the treatment area.
Thankfully, she is feeling well enough to take on this task.  Her feet and hands have been much better this week.  In fact, I would say that she had a very good week all around.                       

Thursday, July 26, 2012

Treatment #21

Mom had a good week.  I think there was just one day that she was feeling really bad.  Otherwise, most days she felt good.
Today she received both drugs (Herceptin and Abraxane).  Next week, she will only get the Herceptin.  We will only be getting the one drug every other week.
Dr. Margolis is a really nice man.  I think we make him laugh more than most other patients.  He always has a smile on his face when we leave.  Today was a pretty classic checkup appointment.  He asked mom how her energy level was.  Mom's response was "really good, I was able to clean the toilets and sinks yesterday."  Dr. M basically didn't know what to say, he managed a good laugh and a "I don't even know what category to put that in."  He indicated that most patients talk about being able to get dressed or feed themselves.  In all of years of practice, no one ever mentioned a good week being able to clean toilets.  Actually, I am still chuckling about his reaction.
Well, so glad that you are taking a little bit of time to check in with us.  We appreciate all of the support.

Thursday, July 19, 2012

Treatment #20

Wow, 20 weeks of treatment seems like a lot.  Looking back, I can't believe that it has been that many treatments already. 
I would classify this week as decent.  The end of the week was definitely better than the beginning.  Her hands and feet started bothering her a bit more and fatique was an issue for several days.
Dr. Margolis opted to skip the Abraxane treatment (Chemo) and just give mom the Herceptin (Protein) today.  I think we might be starting an every-other week of chemo treatments.  This will give mom's body a chance to recover a bit more between treatments.
Her hair is starting to grow back.  The back is gray, but the front and top are completely white.
Mom and Dad made a short road trip to have lunch with some of her Florida friends (about a 45 min drive) this week.  It is really great that she is still getting out and enjoying life.  She continues to have a great spirit.  The smile on her face continues to shine (most days).

Thursday, July 12, 2012

Treatment #19

I am happy to report that mom had a really good week.  Probably the best week in some time.  Her feet and hands are hurting less and she has more feeling in them.  She even started knitting again this week. She hasn't been able to do any hand work in several weeks.  So, it appears that she is handling this dosage of chemo pretty well.  She did receive another dose today and we are keeping our fingers crossed for another good week.
Mom's hair is starting to grow back considerably.  The peach fuzz has turned into a buzz cut.  However, she definitely won't be needing to go to the hair salon for a while.
Today we talked to the doctor about what the next 4-6 weeks will look like.  I am leaving in 4 weeks for a two week family trip (to Africa).  He anticipates that she will continue on the same course of treatment (dosage will be dependent on how she is feeling) for the next 6 weeks.  At that point, he will schedule another MRI to see how the tumors are progressing.  He is considerate enough to wait until I get back so that I can be there for the results.  Normally we talk about things week to week, at least now we know what the rest of the summer will look like.

Saturday, July 7, 2012

Treatment #18

Sorry for the delayed post this week.  A storm that came through the area knocked out our cable/internet for several days.  Thankfully, we had power, unlike many of our neighbors.  However, we all needed to adjust our life a bit with no WiFi or TV.  As you can see, I am happily back.
Mom had a good week.  A good enough week that Dr. Margolis gave her a Chemo treatment along with the Herceptin.  The good news about my delayed post is that she is about 2 days past her treatment and I can report that she is still feeling well this morning.  The doctor gave her a little bit of a reduced dose from the previous treatments.  We are hoping that she continues to tolerate the treatment well.
We had a nice time at Dave's house over the 4th of July.  Mom had a great time catching up and spending some with some friends and family that she hasn't seen in a while.  I think she really enjoyed herself.  Remember, life is about living.

Thursday, June 28, 2012

Treatment #17


Mom had a decent week this week.  She has been having a few bad days.  Her feet continue to bother her enough that the doctor did not give her a chemo treatment again this week.  She only got the Herceptin.
Believe it or not, but mom's hair is just starting to grow back.   It is not very long.  I would say it is like peach fuzz.  It is completely white.  Any colored hair that she had has now turned white.  I won't even call the hair gray; it is all white.  One of my neighbors rubbed mom's head for good luck last week.  She is a doctor.  Today, Dr. Margolis did the same thing.  So, I guess doctors have some crazy superstitions.  If you are in the area and need a bit of luck, I am sure that mom will let you rub her head.
We will be traveling to Baroda to spend a few days with Dave and family for July 4th.  We are all looking forward to getting the family together.

Friday, June 22, 2012

Treatment #16

Sorry for the late posting this week.  We had a few friends over last night and I didn't get around to writing anything until now.
Mom had her 16th treatment this week.  She skipped the chemo treatment and only received the Herceptin again this week.  This is a much needed break for her system.
For those of you far away, I wanted to let you know that the consensus from all of my friends last night was "your mom looks great."  I heard it from lots of different people.  She had a rough couple of days earlier this week, but has been feeling good for the last few days.  Her energy level is getting better now that this is the second week without a chemo treatment.  She stayed out at my house until after 10:30 pm to watch a fireworks show last night, so I know that she was feeling better.  In fact, Dad told me that she was full of piss and vinegar this morning.  I'll take that as a good sign.  :)
Mom just started working on a baby afghan.   This is her first new project since she started treatment.  Don't know who it will be for, but her starting something new is a blessing.

Thursday, June 14, 2012

Treatment #15

Mom had a week of more side effects than we would have liked. Before this week, her toes were troublesome. However, this week the numbness moved farther put her feet and into her heels. The doctor decided to skip the chemo treatment this week. He mentioned that this is very common and in fact mom made it through more treatments than most people do. We will see how a week off does to her system, but he mentioned that it may be a couple of weeks before she gets another chemo dose. Today she just had the Herceptin. I am not surprised that mom has tolerated so many treatments. She is definitely a tough lady.

Thursday, June 7, 2012

Treatment #14

Another week down and more to come.  Mom had a really good week.  She didn't have a chemo treatment last week and it was really evident in her energy level this last week. 
The news did a good job of promoting a new breast cancer drug this last week.  If you didn't see the news, it is a targeted chemo treatment.  The drug attaches to the tumor before it releases into the system.  So, only cancer cells are attacked by the chemo.  The chemo doesn't attack the healthy cells in the body, thus reducing side effects.  The drug trials were very positive and it looks like this may be the next generation of cancer fighting.  The doctor said that mom would be a candidate for this type of treatment.  He anticipates that the new drug will be on the market in 3-6 months.  So, we continue on the course that we are on.

Thursday, May 31, 2012

Treatment #13

Today mom had her 13th treatment.  Because of some side effects of the chemo (a lingering rash from last week), she did not get a chemo dose today.  She only received the Herceptin (protein drug) today.
Her blood counts are still all in the normal range and the doctor gave her the green light to travel to Baroda this weekend.  This will be mom's first venture away from home since her diagnosis.  We are so happy that she is feeling up to some light traveling - even just for a short visit.
It is amazing how life crosses paths with others.  Today was the final treatment for the wife of someone I used to do business with when I was working.  We have seen him and his wife several times over the last few months.  She is also battling breast cancer.  We talked about what a huge accomplishment it was for her to complete her treatment - 11 months.  I can only keep hoping that mom will respond in the same way and we can have that same feeling of joy going into a final treatment.

Thursday, May 24, 2012

Treatment #12

Cancer is a disease of good days and bad days. Mom had some really good days this week and a few more challenging days. Seeing mom with a lack of energy has been really hard. I had referred to her as the Energizer Bunny on more than one occasion. However, I can see how these treatments have had a toll on her physically. Her spirit is another part of her. She still considers herself lucky and takes on each day with as much energy as she can. The doctor visit was typical. We like Dr. Margolis a lot. He has a great sense of humor and a very caring bedside manner. Today we talked about living life not like a cancer patient. Mom is still well enough to enjoy life and he wants her to take every opportunity that comes her way. Life is short and his advice was to hug all the relatives that you like and not the ones you don't. Isn't that what life is about? Do what you enjoy for as long as you can.

Thursday, May 17, 2012

Treatment #11

Mom had a MRI of her liver on Tuesday morning.  The procedure went well, assuming you discount the leaking IV that got her side completely soaked.  The tech opted to continue the test since they were already half way done instead of having to start over after fixing the IV.  So, mom was just a bit wet by the end of the test, but at least they got good images.
We received the results this morning from the doctor.  I have to say that it was only good news.  All of the masses have strunk considerably, and there were no new masses detected.  The doctor indicated that she has responded very well to treatment.  The chemo treatments will continue as long as she is responding well and can tollerate them.  He didn't give us a number of additional treatments, but we are expecting that our weekly visits will continue for at least several more months.
Mom's biggest complaint regarding side effects are with her feet.  As the weather is getting warmer, it seems that her feet are getting colder (and a bit painful).  In fact, she just started wearing her winked warm winter slippers from LL Bean.  Dad will probably be saving a bit of money on air conditioning this summer.  Mom will probably turn the thermostat up a few degrees.
We are counting our blessings today!!

Friday, May 11, 2012

Treatment #10

Well, after double digit treatments, I do believe that we can consider our weekly doctor visits to be a routine.  Mom is doing well and her spirit is just as vibrant as ever.  The current dose of chemo seems to be much better on her system.  She has more energy and some of the side effects are subsiding.
On Tuesday, she will have an MRI of her liver.  This will be our first indication of how effective the chemo treatments have been.  We are hoping for good news when we get the results at our Thursday appointment.
Mother's Day is in a few days.  I feel so blessed to be able to spend another Mother's Day with her and hopefully many more to come.

Tuesday, May 8, 2012

Genetic Testing Results

Good news... mom tested negative for the genetic mutation of the breast cancer gene.  I have to say, I will be sleeping a lot better tonight knowing that fact.
I took a copy of the family tree that the doctor produced.  I have the marked up version now.  However, we are supposed to get a cleaner version in the mail within a few weeks.  I'll be happy to distribute it to other family members.
Also, because of the high rate of prostate cancer among the male members of the family, she recommended starting PSA testing about a decade earlier than normal guidelines.  Early detection is the name of the game.

Thursday, May 3, 2012

Treatment #9

Well, this happened to be a really good week for my mom.  In fact, I think it might have been the best week she has had since she started treatments.  The side effects are being managed well and she had more energy this week.  Her chemo dose today was the same reduced amount from the week before.  Hopefully this will be the new normal for her as she seemed to have tollerated it very well.  The doctor seemed really happy with the physical exam today.  You can barely notice the inflamation on her breast at this point.  The subject of surgery came up today.  The doctor indicated that if the cancer can be controlled/managed in the breast and liver with drugs, she might not undergo any surgery.  So, we will just wait and see.  We hope to have another MRI of her liver in about a month or so.
She was feeling well enough yesterday to do some baking.  This is the first time that she has baked since she started treatments.  We are fortunate enough to enjoy some of her delicious cheese cake.  The girls and I had some after school today - we couldn't wait until after dinner to have some. 
Thank you all for the birthday cards.  Our plan worked out perfectly.  Mom got a total of 41 cards for her birthday.  She knew that "something was up" when she got 13 cards one day in the mail.  Thanks to each of you who took the time to drop her a little note.  She really appreciated the sentiments.  All of you have been an amazing support system for her.  However, I have a warning for all of you.....  Apparently my dad opened (many but not all) the cards and read them before mom got to them.  So, if you have something confidential to send her, you might want to send it to me instead.  I promise not to peek.  :)
We had a nice family dinner on Sunday to celebrate mom's birthday.  Mom, dad and I also went to lunch together on Tuesday (her actually birthday).  We had a really nice time just enjoying each others company.  Hoping for many more happy and healthy years together.

Thursday, April 26, 2012

Treatment #8

So, who said that medicine was a science.  I have to say that it is becoming somewhat of an art form.  We were under the (false) impression that after this treatment, mom would be going in for another scan of her liver.  Well, we are starting to get a bit more clarification on how this whole process works.  We meet with the doctor each week.  At that point, depending on how mom is doing, he will determine the next treatment.  Today she received the Herceptin (protein drug) and a reduced amount of Abraxane (chemo).  The chemo dosage was reduced from her treatment two weeks ago.  It was sort of my expectation that she would be done with this first phase of chemo as this was treatment #8.  However, that is not the case.  The doctor indicated that she will probably have another 2-4 treatments before we have further testing.  So, we plan on taking this one week at a time and more importantly, one day at a time. 
Her side effects were better this week than last.  We are hoping that she will have a good week since the chemo dosage was reducted a bit from before.
It is somewhat frustrating not knowing when this phase will end.  Even I was disappointed to hear that mom will be taking more treatments and I am not even the one going through them.
Mom also had an appointment scheduled with the surgeon in about two weeks.  Dr. Margolis said that we were a long way away from talking to the surgeon again.  So, we cancelled the appointment and will reschedule at some point in the future.

Thursday, April 19, 2012

One Year Later

One year ago, I was planning a 70th birthday party for my mom.  It is amazing how much life can change in just one year.  For those of you that don't know, my mom's birthday is May 1.  After mom's party last year, she spent some time reading all of the birthday cards that she received.  I thought it would be nice if she would get some cards this year too.
So, if you are so inclined, please send my mom a birthday card this year and let her know that you are thinking about her.  Here is some helpful information:

Ida Wolf
2411 Winkleman Drive
Waterford, MI  48329

Treatment #7

The title this week is just "Treatment #7."  As you can see, I omitted the word Chemo.  Mom did not get a chemo treatment this week.  She did get her dose of Herceptin (the protein drug).  I think this is the first week where she had more bad days than good days.  She had some side effects this week and so the doctor is giving her the week off of chemo.  Hopefully her body will recover quickly.  No neasea, but she has been having problems with skin rashes and tingling extremities and a few other annoyances.  Enough of a concern that the doctor didn't want to give her any more chemo this week.
We are hoping that with no chemo treatment this week, that we will have more good days than bad.

Wednesday, April 11, 2012

Chemo Treatment #6

Today was moms 6th treatment. Yes, it was Wednesday this week. The doctor had no appointments for Thursday this week. It is a really busy place. However, we will be back on track next week again. We talked to the doctor about the next step. As you may recall, mom was supposed to get 6-8 treatments and then see how she is doing. Since she is tolerating the treatments well, the doctor said that she will have 8 treatments before we reevaluate. So, after today, mom will have two more treatments before we have more information. Physically, mom is doing pretty well. Most days her energy level is good. She has had a few bad days, but that was expected. I have to say that since most of her hair is gone, at least she has a nice shaped head. She looks really good in those hats. She has a day or two being fatigued after each treatment. One day at a time, but most days are good.

Genetic testing

Yesterday we met with a genetic counselor. Based on the family tree and family history with cancer, we opted to test mom for the breast cancer gene. It was a simple blood test. We should have the results in about four weeks. There is definitely a family cluster of cancer on mom's paternal side of the family. Not only does it relate to breast cancer in women, but there is a link with prostate cancer in men. I learned that each of my grandparents were one of 8 kids. So, the family history took several hours. Mom has LOTS of first cousins. Thank goodness for the family tree book that we had. Ultimately, the testing will not benefit mom, but it will give the next generation some more information. I will be getting a copy of the family history that I will be happy to share with other family members. We will know in 4 weeks if the cancer in the family was just bad luck or if there is an underlying genetic reason.

Thursday, April 5, 2012

Chemo Treatment #5

Well, the doctors office is starting to feel a bit like Cheers.  "Everyone knows your name."  The office staff have been super friendly.  They recognize and call both mom and dad by their first names when they see them.  It is a great personal touch.
Moms appointment today went really well.  Her doctor was out of town for spring break (like lots of other people).  We met with another doctor in the practice today.  He was also very happy with how mom looks.  Her blood levels are still all normal - a very good thing.  Her immune system is still doing very well.  In fact, the doctor said that dad should take mom out.  We'll see if that actually happens.
Mom completed the repair work on the afghan at the doctors office today.  In fact, she was done with her treatment and had another foot or so to finish.  She opted to stay until she was done crochetting, even after the nurse unhooked her from the IV.  Next week I am sure that she will be inspecting one of the other afghans for repair work.

Thursday, March 29, 2012

Chemo Treatment #4

Well, mom really did have lots of hair.  I would say that she has about 10-15% left.  However, she looks great in her new hats!!  Mom is feeling really good and has tollerated the chemo very well so far.
Her blood levels are all in the normal range.  The doctor commented today that by looking at her blood levels, he wouldn't guess that she is chemo patient.  Her body is doing a really great job of fighting.
Mom is already starting to have favorites at the doctors office.  There is one tech that draws blood that mom will be asking for in the future.  He (I think his name is Randall) is a really nice guy that does a wonderful job. 
An update on the afghan project at the doctors office....  Of course mom brought her crochet hook as well as some additional yarn.  She was determined to fix the afghan from last week.  She spent most of her time during treatment working on the afghan.  When I left, she told me she wasn't sure she brought enough yarn.  Not to worry, she will finish next week.  It was really great to see her passion and her love of crocheting.  She looked so content and comfortable working during her treatment today.
It has been just over a month since she has been back from Florida.  She has spent so many hours in tests, treatments and doctors appointments.  However, her spirit is one that I can't even describe; it hasn't changed one bit.

Thursday, March 22, 2012

Chemo Treatment #3

It feels like we are starting into a bit of a weekly routine now.  Our appointments are going pretty well.  The doctor did a physical exam of mom's breast today.  After just two treatments, most of the inflammation is gone.  The doctor was very excited to see such good progress in such a short period of time.  In fact, he used the word "Stoked."
During moms chemo treatment, she covers up with an afghan.  Unfortunately, the afghan had a flaw it in.  Some of the crocheted squares were coming apart.  She wanted me to remind her to bring one of her crochet hooks next week so that she could fix the afghan.  The family member of another patient was knitting and offered up a knitting needle.  Well, I guess that was good enough.  She fixed the afghan as best she could.  The nurse told her that they are going to make sure that they give her a different afghan every week so that she can fix them all.
It as been 14 days since moms first chemo treatment.  Her hair started falling out a bit this morning.  It just looks a bit thinner at this point.  We will be going shopping for a few hats next week.  A wig seemed too hot for the summer. 
Thank you to all of you for your kind words, thoughts and prayers.  It has made a huge difference knowing so many people care.

Friday, March 16, 2012

Chemo Treatment #2

Mom had her second chemo treatment yesterday.  We met with the doctor again so I'll start with the good news.
The pathology of the liver mass was the same as the breast cancer.  They started mom on a second drug (Herceptin).  This is actually a protein that attaches to the tumors that makes the chemo treatment about twice as effective.
She got her first treatment of this other drug with her chemo.  She had a few minor complications during the infusion.  She was feeling really cold and started to shake a little.  The nurses were really great.  They immediately recognized the problem and gave mom some steriods to help with the side effect. She was better in about 10 minutes.  She has tollerated the treatment really well so far. 
The doctor also noted that there were a few other smaller masses on the liver.  The chemo drugs will hopefully shrink them all.
I visited mom this morning.  She slept well last night and looked great this morning.

Monday, March 12, 2012

Side Effects

Well, it has been several days after mom's first chemo treatment.  All things considered, I think she tollerated the treatment very well.  She has not been nauseous or had other physical side effects.  However, she is having problems sleeping at night.  She spoke to the doctors office this morning and is getting some medication to help her get some rest at night.
We also realized that she not only is allergic to latex, but to those seri-strips that they used to close the incision for her port.  She took them off a few days ago because they were irritating to her.  She had such a reaction from the strips that her skin blistered.  Now that they are off, she is feeling much better.

Thursday, March 8, 2012

1st Chemo Treatment

We met with Dr. Margolis today (oncologist).  Let's start with the good news...  the MRI of mom's brain was normal.  Dad can no longer say that she has something wrong with her brain.
The mass on mom's liver was breast cancer that had metastasized.  We are still waiting for the pathology on the tumor to see if it has the same hormone receptors as the cancer in her breast. (This will impact the type of chemo drugs that she will get.) Mom is having an MRI of her liver on Saturday.  They want to get a better look at the liver and see if there are any other spots on the liver. 
Mom had her first chemo treatment today after we saw the doctor.  At this point, her treatment plan will be to have weekly chemo treatments for the next 6-8 weeks.  We will be meeting with the doctor each week as well. 
I have to say that mom seemed pretty nervous going in, but looked really calm coming out.  Because she will be going for weekly treatments, the infusion only took about 90 minutes today.  Her treatments will be shorter, but more frequent.
After a little while in the treatment area, mom started a conversation with the nice lady next to her.  At that point, I knew that she was relaxing a bit more.  The doctors office has afghans in the treatment area for the patients to cover up with.  I knew that mom was relaxing a bit when she started examining the patterns.
She handled the treatment really well today.  We'll see how she does over the next few days with side effects.
One down, more to come....

Monday, March 5, 2012

Port Surgery

Mom had her port inserted today.  The procedure went well and she looked good in recovery.  Mom also tollerated the anesthesia well again.  Hopefully they finally found the right mix of meds for her. When meeting with the surgeon before the procedure, Dad asked how many of these types of surgeries had she done.  Dr. B (the surgeon) jokingly said that she has been in practice for 30 years, so she has done at least 30 of them.  When she came out to talk to us after, she told us that number 31 went very well. :) We go back to see the surgeon in two months.  Our next appointment is on Thursday with the oncologist.

Friday, March 2, 2012

Liver Biopsy

Mom went in for the liver biopsy this morning.  I stayed until she was done with the procedure.  She needs to spend 3 hours laying on her back before they will release her.  She should be released later this afternoon. She usually is very nauseous with anesthesia.  They gave her a double dose of some medicine to help and it actually worked.  We will be making sure that they do that the next time.  This is the first time that I can remember that she didn't vomit.  When they let Dad and I see her after the procedure, her color was good and she felt fine.  She indicated that the procedure was a lot less painful than she had expected.  Dad was of course sitting with her until they release her.  We will have the results next week.
Thanks for all of the prayers and kind words.  Mom's spirit is wonderful.  She is a fighter and has maintained a great attitude.

Wednesday, February 29, 2012

Surgeon Appt

We met with the surgeon today.  She will be inserting the port on Monday.  It is an outpatient procedure and mom should be home later that day.  I really liked her.  She specializes in breast surgery.  She explained things very well and took the time to listen.  Everyone so far has been super caring.
Mom is scheduled for the liver biopsy on Friday.  Also an outpatient procedure.  She needs to lay flat for 2-4 hours after the procedure.  Dad said that he plans to go to the library to get audio books to listen to in the hospital waiting rooms.  I guess the audio book idea wasn't so bad afterall.  The real question will be how much of the book will he miss because I know that he will dose off at some point.
We should have all of the results from all of the tests when we see Mr. Margolis on Thursday next week.

Tuesday, February 28, 2012

First Oncology Appt

Met with the Oncologist today - Dr. Margolis.  He seems like a very positive person and we walked out of there with some hope today.  Our next appointment is Thursday next week.  We should have a treatment plan by then.  Ideally, if everything gets done, mom will get her first chemo treatment at that appointment.  In the mean time, mom is having the following done in the next 10 days:  1)  MRI of her brain  2)  Echo of her heart  3)  Have a port inserted  4)  Have a biopsy on her liver mass.
The meeting with the surgeon is scheduled for tomorrow.  Will find out date for the port at that time.  Don't know when liver biopsy will be yet.  Should know that tomorrow.
A bit frustrated as we didn't get all of the records from Florida.  Working on that too.

Saturday, February 25, 2012

Back in Michigan

Mom and the girls safely arrived back from Florida yesterday afternoon.  Their plane ride was much shorter than our drive.  Dad and I arrived home this afternoon.  The trip was long, but mostly uneventful.  We passed the time with an audio book.  It was good that we have the same taste in books.  Mom and Dad are spending the night at our house tonight.  Andy, mom and the girls went to Waterford this afternoon to turn on their furnace and plug in the fridge.  We are going to unload the car and get them settled back at home tomorrow.